Sick 2

About a year ago I shared a story about the beginning of my struggle with chronic migraines, well now as I lie in bed with full body muscle pain I feel compelled to write again.

  Just last week the doctor pushed my tablet dosage up to the maximum amount allowed. So much infact that he’s never given it to a patient in one dose so it’s split between morning and night! The first few days I felt fantastic, even spent the first day on this rearranging all the furniture in my room. But this week things have gone a little downhill, the exhaustion i’ve been suffering the last few months has returned and an ache has settled all over me. I’m being tested for a few things but most of the ache and tiredness can be linked to the tablets i’m currently on. 

I don’t always suffer with the headache type pain of a migraine but recently what i’ve been experiencing is the dizziness and ache associated with a migraine, what some people don’t realise is you can have a migraine without the headache, its a whole rush of symptoms. At this point, nearing the end of my university degree, I had hoped to be migraine free, but the next step for me will be a daith piercing! 

I’ve heard many people have it done and have all said it’s been successful in atleast reducing their migraines, next time I’m around belfast i’ll be going for it and hopefully it’ll work!

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Todays Drink

Went with a mix of Spinach, Banana, Cucumber and bootea vanilla shake today all mixed with milk! More veg than fruit giving a healthy green colour and hopefully lessening the sugar content in the drink! The ingredients in the picture are exactly what went in to the nutribullet and then I just add milk, whatever amount appears appropriate! 
    

   

This am

The nicest smoothie this morning! 

A banana, handfull of blueberries, half a dozen leaves of spinach, a small amount of bootea vanilla shake and filled up with milk! Made a lovely creamy shake with a hint of vanilla! And it made enough for another glass with lunch! 

  Bottle of water first though ofcourse to kickstart your body!

Being sick

So, in September 2012, when I was Upper sixth, I went on a trip to Liverpool and fell ill on the second day.  I still don’t understand what exactly happened but, we were waiting in the dinner queue and I felt like I was going to faint so I headed back to the flat and got some toast and was looked after.  The next day I felt like I’d woken up from a migraine but yet I’d had no pain at all. I felt horribly nauseas and dizzy for the next few days and the same when I returned home to Belfast.  So I went to the doctor and they couldn’t work it out.  So I continued being dizzy constantly and then the migraines started.  Every single day for months I had a searing headache and was so dizzy I could barely walk around school and did have to stay in bed on occasion.  Sometimes having to spend three or four days in bed before I could actually get up.

In around March 2012, I finally began a course of tablets which seemed to work, I’d tried a few but nothing was easing the pain or dizziness. The tablets I was put on worked for a while and then the dosage was upped, then upped again after another few weeks.  A couple of months later I still had a headache so I was started on another tablet to decrease the headaches caused by the first tablets.  I was still getting headaches, although less frequent they were still there and still causing a major discomfort, so in November 2013 I got a brain scan, after many appointments and a lot of waiting. It showed nothing.  So again I still had no answer as to what was causing the pain.  I had new glasses and extra tablets for use in the event of a ‘migraine attack’.

Eventually, sometime last year I was diagnosed with chronic migraines, which many people may think is just a lousy headache sometimes but it’s honestly not,  ‘The International Headache Society defines chronic migraine as more than fifteen headache days per month over a three month period of which more than eight are migrainous, in the absence of medication over use’.  Doesn’t sound great does it.

http://www.migrainetrust.org/chronic-migraine  I’m not going bore anyone with too much medical talk but if you wish to understand the condition better this is a good link to use.

But as the medication alone did not comfortably remove all of the migraine or headache pain I was having I had to seek other forms of relief.  I got an allergy test done which told me that eating gluten and potatoes among other foods, could be causing the pain.  So I tried going totally gluten free, but was miserable.  Completely distraught at the lack of nutrition and taste, although this is because I hate cooking and have a lot of fruits and vegetables that I was supposed to avoid so I was buying the gluten free supplements instead of cooking nutritious food without gluten, so kudos to all the celiacs out there who actually do it!

I did this for a while, then gradually introduced ‘normal foods’ back into my diet, bad idea because I saw what I was doing, although I still was mostly gluten free I couldn’t stick to it that well.  I have recently abandoned the whole thing because all of the gf food is too calorific and is causing me  to gain much more weight than I should be, so I’m trying to just eat healthier and less high gluten foods than I would have before, having had bagels, cous cous and pasta as my main diet for a long time.  So I have been mostly migraine free for a few months, only suffering from two or three a month, which is pretty good, but as I’m now going to change my diet back I’m scared I’ll be back in bed a lot, but I shall wait and see!

Just needed to get this all off my chest and hopefully help people see that chronic migraines are a real problem and help some people to realise that it is a medical condition.  This was a wordy post, apologies.